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Monday, September 10, 2012

Update on Kawasaki Disease

Last Saturday we went for Aqeel's one year medical check up on Kawasaki Disease. The main purpose of this check up is to see whether the hole at his heart is close or shown indication of it getting smaller. If u want to read his history u can read my previous post on Patent Foramen Ovale

Based on the scan, the hole is still there and the size is about the same as previous year. The doctor further comment that by 5 years old, if the hole did not close means that it will never close. Hence, we have another 2 years to see what is the outcome.

However, if it does not close at all, no significant risk to be worried about. Things that he should not do is diving, buggy jumping and parachute. This is where our body will face different pressure. Such pressure will result our blood to have bubble in the blood and it is afraid that the bubble will go through that hole. If that ever happen, it will cause stroke.

There are way to fix that, which is by Amplatzer PFO Occluder. The AMPLATZER PFO Occluder is a transcatheter closure device used to treat PFO. It is made of two wire mesh discs filled with polyester fabric. It is folded into a special delivery catheter, similar to the catheter used to cross the heart defect during a catheterization. The catheter is inserted into a vein in the leg, advanced into the heart and through the defect.
When the catheter is in the proper position, the device slowly is pushed out of the catheter until the discs of the device sit on each side of the defect, like a sandwich. The two discs are linked together by a short connecting waist.  





Over time, heart tissue grows over the implant, and it becomes part of the heart. The cost of this device is RM15k. However, the doctor convince us that the hole is too small and if he did not go for such activities, there is no need to do such treatment as it carried risk. 

Hence, we have conclude to wait until he is 9 years old and we will do another check up for all the kids to check their heart. At least we know the condition and be prepared.

I opt not to go for annual check up since it will only make me nervous. Besides, he will not be doing those activities between now until he is 9 years old right...

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